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APPENDIX B
Coding Schemes
The coding scheme for question 4:
1. I informed my family that I would or would not donate my organs or which
organs I would donate.
2. Mentioned whether signing a donation card would impact the medical care I
would receive
3. Discussed how organ donation/transplantation works
4. Presented moral or altruistic reasons for donation
5. Related a personal story
6. Related a family story or a story about someone else
7. Made the decision when getting my driver’s license
8. Mentioned religious issues or beliefs
9. Don’t remember the conversation
10. Haven’t discussed it
11. Ambiguous response – I don’t know if I would donate
12. Mentioned discrepancies between one’s wishes and wishes of family members
(discrepancies between self & immediate family who would be making donation
decisions) or just mentioned support or lack of support of donation
13. Not wanting to discuss death
14. Other ___________________
15. No response
16. Combination of 4 and 5 or 6
The coding scheme for question 14.
1. No response
2. Family agreed with donating
3. Family agreed with not donating
4. Family respected wishes either way
5. Family doesn't agree with donating but will respect my wishes
6. Family doesn't agree with not donating but will respect my wishes
7. Family doesn't agree with donating
8. Family doesn't agree with not donating
9. No consensus (Ex. My Mom & Dad agree with donating but my sister doesn't
agree with donating)
10. Still deciding
11. Never discussed
12. Ambiguous
13. Other ____________________